The strangest aspect of migraine is how misunderstood this disorder is, despite the fact that it affects millions around the world. As we’ve discussed in the past posts, those who’re afflicted with this condition experience a great deal of pain and stigma. Many view them as “weak”, “lazy”, or “fakers” because of the debilitating nature of their headaches. furthermore, people suffering from migraines internalize all these attitudes; they start viewing themselves as burden to others in the society and try to withdraw from professional and social obligations.
It’s actually a vicious cycle, and given the fact that migraines are still being researched, there is so much work to be done when it comes to dispelling misconceptions and myths. The question is, what all can a migraineur-or a person who has some loved one with it-do to successfully combat these perceptions? It’s not that easy, but a nice way to start is to become bit proactive about finding and establishing your community. Only by improving your visibility and by saying in no uncertain terms, “migraine is definitely a real medical issue that we all have to deal with,” will we all be able to take on this migraine stigma and find the kind of support we need.
Clicking towards the Brave Community
There’s no doubt that Internet is a nice tool to find community and support. There are so many helpful resources for migraineurs and their loved ones. Most helpful ones are the personal blogs and forums for all those who’re with this condition. It’s in these places that migraine patients or their loved ones encounter people with similar stories and struggles.
The biggest service these spaces do is to put a human face to this issue: they actually remind us that, beyond the science and numbers, there are real people struggling with migraine. For many migraineurs, what began as a way to share their experiences quickly became the best job they’ve ever had. They start learning so much more about migraine, chronic illness, headache disorders, discover new treatments and coping strategies, and meet incredible people. They get the best deal out of this work, and, in the process, they find another means of coping migraine and moving forward.
Some of the blogs focus on the personal and emotional side of this difficult condition. By going through these experiences, bloggers are able to provide a sound platform for understanding and empathy. So it’s actually a two way street: writers get a platform to voice their struggles with migraine, and readers from around the world are reminded that they’re not alone.
Here’s a here’s a short list of such blogs:
• Putting Our Heads Together (www.puttingourheadstogether.com) In her blog Teri Roberts provides helpful information about migraines and also shares her experiences on living with this condition. There are many quick reviews of products and books, helpful links to so many other sources, and discussions of pertinent issues.
• My Migraine Life (https://mymigrainelife.wordpress.com) It’s founder, Sarah focuses on being completely positive while dealing with migraines. She feels this can be achieved with a positive support system and mindset which helps her enjoy her life.
• Chronic Migraine Warrior (www.chronicmigrainewarrior.com): In her blog Jamie Valendy writes about his daily struggles and triumphs of lving with chronic migraines. His is very personal and compassionate voice.
• Migraine Chick (http://migrainechickie.blogspot.com/): This blog takes a more quirky approach to dealing with migraine issues and yet still engages directly with the struggle and difficulty of living with it. It’s equal parts harrowing and uplifting.
• Heal your migraine naturally. It’s possible! (http://migrainenet.com). It’s my blog where I share purely natural remedies to get rid of migraine attacks. You will also find latest news in the world about migraines on my blog. Remember, I’ve been able to heal my migraine by up to 94 percent with Ayurvedic herbs.
There are so many more; and once you start searching for them, you will see that there is a thriving community available to all those who’re down with migraines.
If you or your loved one has migraine, there is no need to feel alone; there’s a highly vibrant and supportive community out there, ready to help.